Elizabeth Barrette (ysabetwordsmith) wrote,
Elizabeth Barrette
ysabetwordsmith

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Legitimate Disability

Here's an interesting essay about the hierarchy of disability and how people abuse each other with it. 

I think about this a lot.  I have some distinct limitations, like needing glasses.  But most of mine are obscure, and I have learned that there's rarely any benefit to be had from trying to get other people to acknowledge them.  It is simpler just to wait until the damn thing blows up in their face.  "Well of course your phone died.  I told you that I kill electronics; you handed it to me anyhow; it is now a brick." "I thought it was all in your HEAD!" "That is not my problem."  So I tend not to describe myself as disabled, that being a legal category, but I can easily describe some of the limitations I have.  

Society would be much more usable if accommodations could be more often had for the asking of them.  This is not something I can change directly.  It is something I can practice, and reward.  If you're coming to my ritual, and you need to sit down, I don't need to know WHY.  I don't care why; it's none of my business.  I especially am not going to ask if you have a card for it.  All I need to know is your maximum standing time, that if the ritual runs longer we'll need chairs, and that a seated ritual would probably work better than a dance for you.  I don't need to know what's up with you; I need to know what you want me to do about it.  Because I'd like everyone to have a good time and not faceplant at my event.  Conversely, I'm alert for restaurants that are or are not accommodating of dietary needs.  Mine, someone else in my party, the total stranger whose argument I can overhear -- doesn't matter.  If you accommodate the requests with a smile, it bumps you up my "let's eat here again" list.  Ditto places where my partner and I split something and folks bring an extra plate instead of bitching or surcharging.  Fight with me or anyone else about the food, and I will not only not come back, I will pan your slop trough restaurant to my friends who also have food issues.

You get what you permit; you get what you reward.  Use your influence -- and your folding vote -- where you can.

And don't be an asshole.  
Tags: activism, community, holiday, reading
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  • 6 comments
You get what you permit, you get what you reward -that's doubly true, strangely :-)
thank you wordsmith !
I'm glad I could help.

Note that your efforts may have more impact if you tell people what they did right or wrong.
"I have some distinct limitations, like needing glasses."

This is me as well. Just the other day I had my nose rubbed in the fact that I'd be pretty handicapped IF I DIDN'T HAVE GLASSES.
I was outside riding the mower when a branch knocked my glasses off. My brand new $300 wire-frame glasses which disappear the moment I'm more than 4 feet away from them.
I wound up having to call my neighbor on my cell phone to come rescue me! Luckily she was able to locate my glasses quickly in the grass AND they weren't damaged!

What's scary though was sitting there on top of the mower and looking down at the grass and seeing nothing but a green blur! I couldn't see them anywhere!
I hate feeling so helpless!
:^[


Your vision sounds worse than mine. At least with my glasses off, I can see shapes. I can usually find them if they get knocked off, although in high grass it would be a challenge. But I couldn't read without them (which is unquestionably a major disability in a culture that demands literacy) and I couldn't navigate well over distances (which I'm not good at for other reasons already). My glasses make the difference between being inconvenienced occasionally or disabled.
On the one hand I am very much a "real enough to bite" person. On the other hand I have had consistently bad luck with sewing machines. This is incompatible with my world view; there is no logical reason why sewing machines should choke for me; I am good with other types of machinery and hand sewing is no problem for me. But sad experience has led me to accept that I should not mess with sewing machines. Logically I should be able to accept that you have sad experience saying you should not mess with electronics.

And my smart phone is my familiar spirit and no way would I put my familiar spirit on the line over a minor thing like dueling worldviews. However, I feel very uneasy about allowing anyone else to hold Pyewacket anyway, so the issue would not be likely to come up.

My husband and I both wear glasses. His vision is so bad that on the rare occasions when he did not leave them in their proper place he has to ask me to look for them. When I mislay mine I can often find them bare eyed, but not always. It is a good thing there are two of us.
I'm very empirical. I look at what happens, identify patterns, and extrapolate models. Whatever model best explains the circumstances and predicts future events is the one I use. I don't care if it matches anyone else's.

I think I was around 8 before I realized that, when other people said things like "well it didn't just grow legs and walk away on its own!" for them that was true. If they put down an inanimate object in their house it would stay there.

No wonder they freaked out in my house, or around me, where things don't always stay put so neatly. Where numbers don't always add up the same way three times running. Where electronics often misbehave.

*shrug* I just be myself and let other people worry what to go do about it. If they're not around me much, it doesn't matter. If they are, well, the nature of reality around me becomes inescapably obvious sooner or later. It's a lot easier to wait until after something's happened and they've freaked out and eventually run out of steam.

It is very prudent of you to protect your smartphone if you've turned the thing into an artifact. A lot of people are doing that who don't even know to be careful with it.